When your daughter has a concussion …. and sunflowers 

Four years ago my daughter started playing rugby… I wasn’t happy, but only because it interfered with her softball I was coaching… but off she went and loves the sport. Never an injury, only bruises. She was particularly proud of cleat marks on her legs!?

Nearly 6 months ago, my now 17 yr old daughter got a concussion playing rugby the last game of the season.  Never did we think her life would come to a screeching halt.  It was just a tackle, she’d be fine in a week…. right?

Wrong.

It turned out she would not complete the last 2 months of her grade 11 year.  She would not visit with friends, leave the house or even spend much time with the family for nearly 3 months. Her days were spent in a quiet room, curtains drawn, trying to keep out the light and noise.

She had a planned on working all summer, getting her driver’s license and spending time with friends.  All her plans vanished and so did many friends, they didn’t understand how somebody was unable to communicate via text or leave the house.

She also gets post concussion amnesia, which occurs when her brain becomes overloaded, basically shuts down and she loses her filters. This means swearing and outbursts of which she had no recollection, conversations repeated over and over again. 

This is a girl who has never used a swear word in front of her family, ever.

She got in an argument with me because I wanted to plant a rose bush in the back yard and she wanted sunflowers. I mean REALLY wanted sunflowers. To the point I was called an idiot,  she stomped into the house… and went to sleep.

Who does that? No teenager I know wants sunflowers that badly.  I decided given her situation I would plant both.  

The next day I asked her if she was up for a ride to the nursery to buy sunflowers to plant. The response “why would you plant sunflowers,  they don’t look as nice as roses”

I knew we still had a long way to go. I felt like I had a small child to take care of again.  She couldn’t even remember if she’d eaten or not.

Over the last 6 months I have researched every last thing I can about brain injuries.  I contacted anyone I thought could point me in the right direction of getting the help and therapy she desperately needed.

There is not a lot of general knowledge about severe concussions, there is awareness, yes, but knowledge and where to go is difficult to find.

She did find the right doctors and therapists, and for that we are forever grateful.

Our summer holiday in Riviera Maya meant my husband and I taking turns with both our daughters. One going out to visit ruins with our younger daughter, while one stayed at the resort with our concussed daughter.

Even snorkelling was too much for her.  So we bought her a floaty, she put on the mask and snorkel and we pushed her around to see the fish. She loved it, whatever works!

Fast forward to today, 6 months later.  She still has a lot of symptoms, but less severe. She is now in grade 12 and back at school.  

Some days she can attend 2 classes, some all 4 classes, some days none. In all this the teachers and school have supported her and believed in her.  They understand her brain is healing and she might hand work in late.  They understand she might need to leave partway through a class because the pressure in her head is too much.

Today we attended her parent teacher interviews,  it was almost too much but she insisted on coming. She rested all day so she would be up to it. 

She has worked through a haze to get an A average.  I am so inspired by her fight I can’t describe  it.

The one hour of meetings in a loud gym and bright lights was too much. When we got home she promptly went to her room and slept for 4 hours. 

I reminded her that she is so strong, and never to forget where she was and how far she’s come.  

And bless her heart she said “mom, I probably won’t remember it, but I know you’ll remind me”

It’s been a long journey of therapy, frustration, support and even laughter.  My teenage daughter has relied on me more than she ever has and the journey isn’t over yet.

She is getting there,  and I will never let her forget how much she has inspired us all with her strength.

And I will plant those sunflowers that seemed.to mean so much to her.

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Even though I really can’t…

I know I’m gone a lot when even my cats have stopped begging me for food…

Last night was the straw that broke the camel’s back, I mean really broke it beyond repair.  I am the Vice President of a large softball club… a Volunteer.

In order to attend an emergency meeting for a group of demanding softball parents… because although their season doesn’t start until next April, they wanted to be heard now… I arranged last minute rides for one daughter to and from soccer, told my other daughter (who has post concussion syndrome) that I promised to be back in time to help her study, and texted my husband to say all was under control.

Myself and 3 other executive members met 45 minutes early to discuss the situation before meeting with the parents and Coach.  The meeting continued for another 2 hours.

During that time we were yelled at, accussed of having an agenda (this is for Rec ball), I was accussed of ‘fixing’ team rosters, reprimanded for not answering emails promptly …. the list goes.  This all in the face of something we cannot control or answer until NEXT year when players are registered in January.

Somehow I missed the memo… out of 42 teams I look after, theirs must be run differently from the club rules and they demand a certain criteria be worked out for theirs.

When I quietly pointed out that we have full time jobs, families and we’re volunteers (I alone spend thousands of hours a year volunteering for ball) that we can’t possibly answer emails and conduct what they’re asking us to on a moments notice … I was promptly told they are all busy, just like us.

That got me to thinking… I have just missed another night of my daughter’s soccer, I am team mom and should be there.  And, I love watching them practice, they are amazing.  My 17 year old daughter needs me desperately to help her with homework and organization since she has not recovered from a concussion 6 months ago.  I need to feed my cats!

smudge-and-sherlock-dec-17-2015

What am I doing? I AM busy too, in my own life.  Perhaps that’s what the other parents mean, they are busy with their own life and can’t imagine the time I give up to run the club at the expense of my own family.

It is my own fault, nobody made me do this.  The problem is I can’t say no, so I do it, even though I really can’t.

I work from home, some nights I work until 2am… so I can be at my own girls activities, coach a game, take care of softball problems, go help out a coach, etc.

Even though I really can’t, I make it work… sort of.  There is always someone who pays for me making it work.  Too much lately it is my family.

So last night, being abused by parents and hearing the comment ‘they are busy too’, it really resonated with me. Wait a minute, I am busy, and I should be with my family.

I am tired of apologizing to my family for being gone again.  I am tired of being worn out, beaten down and exhausted.

The irony is I got into this because I am the Coach of my daughter’s team, and the sport she loves is taking all my time away from them.

In a few years they will both be away in college, we cannot get these years back.  I do not want to look back and regret what I missed because I was there for everyone else, but not my own girls.

Time to be present, in their life and not everyone else’s.

I’m not sure how I will work all this out, but I will find a way, I always do.

 

 

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Here goes nothing!

Mon Oct 31, 5:15 am… my alarm will wake me up, and off I will go to 6am boot camp… if this is what it takes for one hour for me, then so be it.

I can only laugh at the fact I am searching for one hour in a day for me. There must be one hour between 6am and midnight, right?

After working, coaching, driving my girls and the team around, and helping to run a large softball club,  by midnight  I’m ready for bed….not exercise!

My solution for ‘me’ time is starting boot camp at 6am!  I am excited and a little nervous.  6 days until go time!

Only the cats will notice I’ve been gone and back before everyone is up.

When I appear red-faced and sweaty,  my family will only assume I’ve been doing dishes and laundry at a faster pace than is normal.

Maybe this will be the start of more than just exercise.  Maybe I will go to bed before 1 am, turning off my computer and the barrage of questions and complaints from the Softball world. (Stay tuned for those blogs!)

Just maybe I’ll learn to say no once in a while to all those extra commitments…

Life is short, it’s time to take control, weed out what doesn’t make me happy. Keep everything close that does.

Next up… yes I can, even though I really can’t!

 

 

 

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